Background: The factors influencing parents’ willingness to enroll their children in biobanks are poorly understood. This study sought to assess parents’ willingness to enroll their children, and their perceived benefits, concerns, and information needs under different consent and data-sharing scenarios, and to identify factors associated with willingness. Methods: This large, experimental survey of patients at the 11 eMERGE Network sites used a disproportionate stratified sampling scheme to enrich the sample with historically underrepresented groups. Participants were randomized to receive one of (...) three consent and data-sharing scenarios. Results: In total, 90,000 surveys were mailed and 13,000 individuals responded (15.8% response rate). 5737 respondents were parents of minor children. Overall, 55% (95% confidence interval 50–59%) of parents were willing to enroll their youngest minor child in a hypothetical biobank; willingness did not differ between consent and data-sharing scenarios. Lower educational attainment, higher religiosity, lower trust, worries about privacy, and attitudes about benefits, concerns, and information needs were independently associated with less willingness to allow their child to participate. Of parents who were willing to participate themselves, 25% were not willing to allow their child to participate. Being willing to participate but not willing to allow one’s child to participate was independently associated with multiple factors, including race, lower educational attainment, lower annual household income, public health care insurance, and higher religiosity. Conclusions: Fifty-five percent of parents were willing to allow their youngest minor child to participate in a hypothetical biobank. Building trust, protecting privacy, and addressing attitudes may increase enrollment and diversity in pediatric biobanks. (shrink)

This paper revisits Herbert Kliebard's figure of John Dewey in Kliebard's The Struggle for the American Curriculum . The paper argues that, while there are indeed reasons for the disembodied picture of Dewey that emerges from Struggle , such figuration ultimately has an effect that is overly reproductive: It ignores Dewey's efforts to live within and across institutional boundaries so as to reconstruct the practices and interests of the society in which he lived. Using the work of Bakhtin and Dewey, (...) I argue that it is only by such a Deweyan engagement that our own voices will ultimately be able to "ring" or "sound" in novel and potentially radical ways. (shrink)

Name der Zeitschrift: Kierkegaard Studies Yearbook Jahrgang: 20 Heft: 1 Seiten: 301-320.

Like yoga before it, the Buddhist mindfulness practice is sweeping across North America. As only one example, Time magazine, discussing the Center for Disease Control's recent report on mindfulness in the workplace, led its story with the claim that "the American workforce is becoming more mindful."1 A growing number of Americans are now just as likely, it seems, to meditate as they are to pray, and the Four Noble Truths have, for some, surpassed the Ten Commandments as the foundation for (...) a life of meaning and purpose.The above picture is, no doubt, a caricatured portrait. But it captures, we believe, an evolving trend that needs further attention. In this paper, we seek to explore some of these changes in North... (shrink)

Selecting provincial leaders is a fraught task for authoritarian regimes. Although central authorities more readily trust provincial leaders with close ties to the center, such loyalists may lack the local knowledge and connections necessary to govern adeptly. Using an original data set on the tenures and backgrounds of China’s provincial party standing committee members, this article explores how Beijing fine-tunes provincial leadership teams to resolve this dilemma. The analysis challenges the conventional wisdom that Beijing exerts its tightest personnel control in (...) strategically important provinces. It shows that Beijing tolerates significant embeddedness of local leadership in provinces with complex governance challenges even when these provinces are important. Moreover, it finds that when the center reasserts control through appointments of loyalist personnel during times of crisis, it does so in a balanced manner. These calibrated personnel strategies highlight the extent to which authoritarian systems rely on local expertise and experience as well as top-down control. (shrink)

For the first time, this book brings Kierkegaard into a dialogue with various postmodern forms of Christianity, on topics like revelation and the Bible, the atonement and moralism, and the church as an apologetic of witness.

In this first of two articles on chanting and enchantment we introduce the problem of mass synchronisation via collective communicative action that works to eliminate or lessen independent and critical assessment. Chanting forges a singular ‘collective’ identity with little to no structure that would allow for logical tests such as falsifiability. We argue that this problem can be a fundamental threat to democratic polity, and we offer the Neo-Kantian theory of dimensional accrual and dissociation as an explanation. In Part 2, (...) we will continue with examples and a discussion of the confluence of philosophical examination and social scientific explanations. (shrink)

Anglo-American approaches to Aristotelian metaphysics have been deeply influenced by the reconstructions of the “Oxford analysts,” most notably of the late G. E. L. Owen. In Owen’s seminal articles, Aristotle emerges—like the later Plato of G. Ryle and J. L.Ackrill—as a primitive exponent of analytical methodologies. The principles of Aristotelian metaphysics—being, unity, identity, essence, accident—are reconstructed by Owen as foundational concepts implicit in ordinary linguistic practices. Metaphysics is, in effect, reduced to a form of logic, focused on the clarification of (...) the conceptual apparatus of ordinary language. (shrink)

People often use indirect speech, for example, when trying to bribe a police officer by asking whether there might be “a way to take care of things without all the paperwork.” Recent game theoretic accounts suggest that a speaker uses indirect speech to reduce public accountability for socially risky behaviors. The present studies examine a secondary function of indirect speech use: increasing the perceived moral permissibility of an action. Participants report that indirect speech is associated with reduced accountability for unethical (...) behavior, as well as increased moral permissibility and increased likelihood of unethical behavior. Importantly, moral permissibility was a stronger mediator of the effect of indirect speech on likelihood of action, for judgments of one's own versus others' unethical action. In sum, the motorist who bribes the police officer with winks and nudges may not only avoid public punishment but also maintain the sense that his actions are morally permissible. (shrink)

Venturing into novel terrain poses physical risks to a female and her offspring. Females have a greater tendency to avoid physical harm, while males tend to have larger range sizes and often outperform females in navigation-related tasks. Given this backdrop, we expected that females would explore a novel environment with more caution than males, and that more-cautious exploration would negatively affect navigation performance. Participants explored a novel, large-scale, virtual environment in search of five objects, pointed in the direction of each (...) object from the origin, and then navigated back to the objects. We found that females demonstrated more caution while exploring as reflected in the increased amounts of pausing and revisiting of previously traversed locations. In addition, more pausing and revisiting behaviors led to degradation in navigation performance. Finally, individual levels of trait harm avoidance were positively associated with the amount of revisiting behavior during exploration. These findings support the idea that the fitness costs associated with long-distance travel may encourage females to take a more cautious approach to spatial exploration, and that this caution may partially explain the sex differences in navigation performance. (shrink)

In 2017 we published a paper in this journal proposing a philosophical framework for recognizing ecological communities as natural entities, the Evolutionary Community Concept. That paper attracted a lengthy reply; herein we take the opportunity to clarify critical aspects of the ECC and use a case study to demonstrate how the ECC can be made operational. We maintain the ECC provides a framework useful for establishing objectives associated with ongoing and proposed restoration and conservation efforts.

Although many people choose to sign consent forms and participate in research, how many thoroughly read a consent form before signing it? Across 3 experiments using 348 undergraduate student participants, we examined whether personality characteristics as well as consent form content, format, and delivery method were related to thorough reading. Students repeatedly failed to read the consent forms, although small effects were found favoring electronic delivery methods and traditional format forms. Potential explanations are discussed and include participant apathy, participants trying (...) to save time by not reading the consent form, and participant assumptions about consent forms. (shrink)

Previous simulation work on the evolution of communication has not shown how a large signal repertoire could emerge in situated agents. We present an artificial life simulation of agents, situated in a two-dimensional world, that must search for other agents with whom they can trade resources. With strong restrictions on which resources can be traded for others, initially non-communicating agents evolve/learn a signal system that describes the resource they seek and the resource they are willing to offer in return. A (...) large signal repertoire emerges mainly through an evolutionary process. Agents whose production and comprehension abilities rely on a single mechanism fare best, although learning enables agents with separate mechanisms to achieve some measure of success. These results demonstrate that substantial signaling repertoires can evolve in situated multi-agent systems, and suggest that simulated social interactions such as trading may provide a useful context for further computational studies of the evolution of communication. (shrink)

Mobile devices with health apps, direct-to-consumer genetic testing, crowd-sourced information, and other data sources have enabled research by new classes of researchers. Independent researchers, citizen scientists, patient-directed researchers, self-experimenters, and others are not covered by federal research regulations because they are not recipients of federal financial assistance or conducting research in anticipation of a submission to the FDA for approval of a new drug or medical device. This article addresses the difficult policy challenge of promoting the welfare and interests of (...) research participants, as well as the public, in the absence of regulatory requirements and without discouraging independent, innovative scientific inquiry. The article recommends a series of measures, including education, consultation, transparency, self-governance, and regulation to strike the appropriate balance. (shrink)

Beginning in the 20th century, scientific research came to be dominated by a growing class of credentialed, professional scientists who overwhelmingly displaced the learned amateurs of an earlier time. By the end of the century, however, the exclusive realm of professional scientists conducting research was joined, to a degree, by “citizen scientists.” The term originally encompassed non-professionals assisting professional scientists by contributing observations and measurements to ongoing research enterprises. These collaborations were especially common in the environmental sciences, where citizen scientists (...) participated in counting wildlife and measuring environmental conditions. Later, patient groups began to play a more active role in supporting clinical trials and collecting health records from affected individuals. (shrink)

We raise two objections to Slote’s article. First, empathy cannot provide information about the world in the direct way Slote proposes. Emotional contagion might be able to do so, but this type of process is different from the empathic one. Second, even if we accept his view of empathy, his claim that we make moral judgments via empathizing with the ‘warmth’ or ‘coldness’ of the actor seems misguided because, we usually empathize with the patient, and we empathize with emotions, not (...) “temperatures”. (shrink)

Peer review is a widely accepted instrument for raising the quality of science. Peer review limits the enormous unstructured influx of information and the sheer amount of dubious data, which in its absence would plunge science into chaos. In particular, peer review offers the benefit of eliminating papers that suffer from poor craftsmanship or methodological shortcomings, especially in the experimental sciences. However, we believe that peer review is not always appropriate for the evaluation of controversial hypothetical science. We argue that (...) the process of peer review can be prone to bias towards ideas that affirm the prior convictions of reviewers and against innovation and radical new ideas. Innovative hypotheses are thus highly vulnerable to being “filtered out” or made to accord with conventional wisdom by the peer review process. Consequently, having introduced peer review, the Elsevier journal Medical Hypotheses may be unable to continue its tradition as a radical journal allowing discussion of improbable or unconventional ideas. Hence we conclude by asking the publisher to consider re-introducing the system of editorial review to Medical Hypotheses. (shrink)

As genomic science has evolved, so have policy and practice debates about how to describe and evaluate the ways in which genomic information is treated for individuals, institutions, and society. The term genetic exceptionalism, describing the concept that genetic information is special or unique, and specifically different from other kinds of medical information, has been utilized widely, but often counterproductively in these debates. We offer genomic contextualism as a new term to frame the characteristics of genomic science in the debates. (...) Using stasis theory to draw out the important connection between definitional issues and resulting policies, we argue that the framework of genomic contextualism is better suited to evaluating genomics and its policy-relevant features to arrive at more productive discussion and resolve policy debates. (shrink)

Recent work has suggested that conservation efforts such as restoration ecology and invasive species eradication are largely value-driven pursuits. Concurrently, changes to global climate are forcing ecologists to consider if and how collections of species will migrate, and whether or not we should be assisting such movements. Herein, we propose a philosophical framework which addresses these issues by utilizing ecological and evolutionary interrelationships to delineate individual ecological communities. Specifically, our Evolutionary Community Concept recognizes unique collections of species that interact and (...) have co-evolved in a given geographic area. We argue this concept has implications for a number of contemporary global conservation issues. Specifically, our framework allows us to establish a biological and science-driven context for making decisions regarding the restoration of systems and the removal of exotic species. The ECC also has implications for how we view shifts in species assemblages due to climate change and it advances our understanding of various ecological concepts, such as resilience. (shrink)

Shane Carruth's 2013 film Upstream Colour provides a model for considering identity and subject formation in what Steven Shaviro calls the “network society.” Shaviro argues that our contemporary mo...

Is behavioral integration a necessary feature of belief in folk psychology? Our data from over 5,000 people across 26 samples, spanning 22 countries suggests that it is not. Given the surprising cross-cultural robustness of our findings, we argue that the types of evidence for the ascription of a belief are, at least in some circumstances, lexicographically ordered: assertions are first taken into account, and when an agent sincerely asserts that p, nonlinguistic behavioral evidence is disregarded. In light of this, we (...) take ourselves to have discovered a universal principle governing the ascription of beliefs in folk psychology. (shrink)

_Lux: A Decade of Artists' Film and Video_ Edited by Steve Reinke and Tom Taylor Toronto: YYZ Books, 2000 ISBN 0-920397-26-3 373 pp.

Publishing as a Vocation places publishing in its politicaland commercial setting. It addresses the political implications ofscholarly communication in an era of new computerized technology.Horowitz examines problems of political theory within the context ofproperty rights versus the presumed right to know and he explores thespecial strains involved in publishing as commerce versus informationas a public trust. This book offers a knowledgeable and insightful viewof publishing and makes an important contribution to the study ofmass culture in Western societies.

ABSTRACT After initially pitting partisans against purists, the literature on the ethics of fandom has coalesced around a pluralist position: purists and partisans each have their own merits, and there is no ideal form of fandom. In this literature, however, the fair-weather fan continues to be viewed with dismissal and derision. While some fair-weather fans may earn this contempt, many fair-weather fans, we argue, are not only acceptable, they have important advantages over partisans and purists, and as such are in (...) a better position to navigate some of the moral complexities inherent in modern sports. We develop this argument first by clarifying the nature of the fair-weather fan. We then examine challenges that fans face in many modern sports, first owing to their economic nature and, second, due to the morally tainted status of many of them. We argue that the fair-weather fan meets these challenges in ways that the partisan and purist cannot replicate. (shrink)

Explore the Resistance to Death, and Awaken More Fully to Life Death is simply one more aspect of being a human being, but in our culture, we've made it a taboo. As a result, most of us walk through life with conscious or unconscious fears that prevent us from experiencing true contentment. Embracing the End of Life invites you to lean into your beliefs and questions about death and dying, helping you release tense or fearful energy and awaken to a (...) more vital life now. Preparing mentally, emotionally, and spiritually for this inevitable transition provides improved clarity and strength. This book shares the idea of death as a journey of three steps—resistance, letting go, and transcendence. With dozens of exercises, practices, and meditations, author Patt Lind-Kyle helps you experience your truest, most expansive self. Exploring multiple aspects of life and death—with everything from chakras and the Enneagram to living wills and health care directives—this book is meant to help you unwind the challenge of death and discover the truth of your own path to inner freedom. Praise: "The fear of dying keeps countless people from living fully—as well as keeping countless others trapped in endless suffering. Embracing the End of Life will help all of us prepare joyously for the inevitable."—Christiane Northrup, MD, New York Times bestselling author of Goddesses Never Age Winner of a 2018 Gold IPPY Award. (shrink)